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Long covid and fatigue

Batch cooking on good days for bad days

Started 11 February 2025 · 20 replies · 242 hearts · read 5.1k times

WinnieCarlisle, UK · 11 February 2025
1.4 years ago

Batch cooking on good days for bad days — putting it in its own thread so it does not get lost in the check-in.

I have avoided asking about this for six weeks out of pure embarrassment.

Squeamish subject, so I am going to be plain about it and get it over with. It has been going on for long enough now that I would like to know whether it is ordinary.

Nobody warned me about this specifically and I am starting to think that is because it is common enough that everybody assumed I knew.

I have had a fortnight of this and then three good days and then another fortnight, and the pattern is the bit I would most like to understand.

Thanks in advance. Even a one-line "yes, me too" would help more than you would think.

81

NazneenDhaka, BD
#1

Something practical: I schedule nothing for the day after, ever. That single rule has prevented more crashes than anything else I do.

8

PeronelCanterbury, UK
#2

My worst weeks all followed a good week. That pattern was so consistent that I now treat a good week as a warning rather than a permission.

14

CloverTotnes, UK
#3

Reading Peronel, I recognised more of that than I expected to.

I found the guides here more realistic about energy than anything else I have read, because they do not assume a body with a reserve.

7

Facilitator note: pharmacists are the most underused people in this whole business and several of the questions on this page are ones they answer in ten minutes at a counter.

23

NkemPort Harcourt, NG
#5

What Peronel described happened to me too, in a slightly different order.

The hardest part was other people's timelines. Everything written about this assumes a body that recovers overnight and mine does not.

17

BoazHaarlem, NL
#6

Heart rate as a pacing tool was more useful to me than how I felt, because how I felt was a lagging indicator by about a day.

9

TallisEly, UK
#7

I want to say plainly that this has gone well for me, slowly, over two years, and that slowness was the ingredient rather than an obstacle.

13me too 8

RonanBelfast, NI
#8

Gently disagreeing with Nkem, or rather adding the other half of it.

What worked was splitting everything into halves. Half a shop, half a walk, half an evening, and stopping at half even when it felt unnecessary.

11

NellFrome, UK
#9

Reading Boaz, I recognised more of that than I expected to.

What I could not tell apart was medication fatigue and my usual fatigue. My notes eventually showed a pattern but it took four months to see.

13

MapleToronto, CA
#10

The thing I had to learn was to stop before I felt like stopping. Everything I did up to the point of tiredness was borrowed from the next day.

5

FitzLimerick, IE
#11

The advice to exercise gently is complicated for us and I would say be very careful with it. Mine went badly and my clinic explained why afterwards.

10me too 5

MaritGroningen, NL
#12

Building on what Maple wrote rather than answering the original question.

What helped enormously was writing down what I did each day, not how I felt. Feelings lagged; activity was the leading indicator.

15

PersisBristol, UK
#13

Temperature regulation was a thing for me that nobody had mentioned. Warmth helped considerably and it took me a year to work that out.

10

HuwWrexham, UK
#14

My appetite changes and my energy changes interacted in ways that took months to untangle, and eating consistently was what stabilised both.

14

SaraOslo, NO
#15

Picking up Persis’s point rather than starting a new one.

I had to accept a smaller week. Not permanently, as it turns out, but for about a year, and the accepting was harder than the smaller week.

9

BunnyWeston-super-Mare, UK
#16

Somebody in this circle described a good day as a loan rather than a gift, and I have quoted that to about nine people since.

11

PatrickLimerick, IE
#17

No wisdom, just: I am sorry. That sounds genuinely hard.

7

TommieEly, UK
#18

Reading Sara, I recognised more of that than I expected to.

My clinic asked me to change one thing at a time with four weeks between changes, which felt glacial and was completely correct.

10me too 6

I want to acknowledge how hard it is to post about this at all. Several of the subjects this circle covers are ones people carry alone for months before asking.

27

RillaAberdeen, UK
#20

Mine improved to a genuinely better place over eighteen months and I would not have believed that in month two.

9