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Coming off

Stopping after a gallbladder problem

Started 5 April 2026 · 15 replies · 101 hearts · read 1.4k times

DelythBala, UK · 5 April 2026
3 months ago

Stopping after a gallbladder problem Writing it down partly to work out what I actually think.

I do not know if this belongs in this circle. Move me if not.

I have been reading this circle for months and everybody else's account of this stage sounds much tidier than mine, which is either reassuring or the wrong conclusion entirely.

I nearly did not post this because it feels like a small thing to be stuck on. It has taken up most of my thinking for a month, so apparently it is not small to me.

Sorry for the length. If anybody has been at this point, I would very much like to hear how it went.

34

SinéadCork, IE
#1

Mine was a planned stop with my prescriber over about four months. Having a plan made the difference between a decision and a collapse.

5

FabianBasel, CH
#2

The thing nobody told me is that stopping is a process with its own weeks in it. I had expected a date and got a season.

7

BenediktFacilitatorVienna, Austria
#3

Gently noting that we have three people offering different schedules and none of us is prescribing. Descriptions of what happened to you are welcome; instructions are not.

13

DashSeattle, WA
#4

What Benedikt described happened to me too, in a slightly different order.

I came off because of cost, not because of anything clinical, and it took me a long time to say that without embarrassment. It is an extremely common reason and it is not a moral failing.

7me too 9

BramwellRipon, UK
#5

I came off for eight months and went back on, and I want both halves of that on the record because threads that only cover the leaving are only half a story.

8me too 8

GudrunAkureyri, IS
#6

Bramwell — yes, and the bit that took me longest to accept was the next part.

Nobody here is going to think less of you for stopping. That was my genuine fear when I posted about it, and it was completely unfounded.

6

BryonyMalvern, UK
#7

Building on what Gudrun wrote rather than answering the original question.

I stopped, and about six weeks later the background hum came back, and that was the part I was least prepared for. Not the physical side. The noise.

3

Birdie BWhitstable, UK
#8

What I would say to anybody considering it is to have the conversation before you decide rather than after. My prescriber had two options I had not known existed.

7

TanviMumbai, IN
#9

You have described the bit that nobody warns you about.

7

GabePhoenix, AZ
#10

Honest note: my first month off was much better than I had feared and my third month was much harder. The order surprised me.

6

NikoTbilisi, GE
#11

Tanvi has already said most of this and I want to add the one part that was different for me.

Mine was a side-effect decision, taken carefully, with two conversations and a proper look at the alternatives first. It was the right call and it was still sad.

3

TressaSt Austell, UK
#12

The practical thing I got right was writing down why I was stopping while I was still on it. Two months later I could not have reconstructed my own reasoning.

6

BronLincoln, UK
#13

I stopped because my prescriber said so, which is a very different experience from choosing it, and it took me longer to make peace with because it was not mine.

7me too 5

BenediktFacilitatorVienna, Austria
#14

A small housekeeping note. I have added this thread to the circle's standing resources because the question comes round every few months and this is the best version of the answer we have.

12

TillyHereford, UK
#15

What I found hardest was other people treating it as a failure while my prescriber treated it as a normal clinical decision. Their reaction was the difficult part, not the decision.

4