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PCOS

Cycle tracking through a titration

Started 21 October 2024 · 18 replies · 201 hearts · read 2.3k times

NikitaYerevan, AM · 21 October 2024
1.7 years ago

Cycle tracking through a titration — putting it in its own thread so it does not get lost in the check-in.

Bringing this here rather than to the general circle because the specifics change the answer.

I have brought this up at two appointments and been reassured both times without anybody actually looking at it, which is why I want to go in better prepared.

I have had this diagnosis a long time and none of the general guidance quite fits, which is why I am asking here rather than in the wider circles.

What has changed is small and I only noticed because I keep records, and I cannot decide whether small and consistent is worth raising.

I will report back after my specialist appointment, because there is not much written about this and I would like to add to it.

67

BodhiByron Bay, AU
#1

Something I did not expect was how much of my long-standing hunger pattern was not a character flaw. That took a while to sit with.

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SorayaTehran, IR
#2

Reading Bodhi, I recognised more of that than I expected to.

My bloods moved in a direction my GP described as encouraging, and she then spent nine minutes explaining what that did and did not mean, which was the useful part.

9me too 3

MaryamBirmingham, UK
#3

Gently disagreeing with Bodhi, or rather adding the other half of it.

I asked specifically about the fertility side before starting and got a clear answer and a plan, and I would push anybody to have that conversation early.

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MiraFacilitatorRotterdam, Netherlands
#4

Noting for later readers: when somebody updates after the appointment, that update tends to be the most useful part of the page and the part nobody thinks to write.

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NadiaCairo, EG
#5

What I would say is bring the whole history to the appointment. Mine was treated as a new problem for years because nobody joined the dots backwards.

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SaoirseKilkenny, IE
#6

My cycles changed within about four months, which nobody had told me to expect and which turned out to be the thing I most wanted to talk about.

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ClemmieNorwich, UK
#7

Fifteen years of being told to try harder, and then one appointment where somebody actually explained the insulin side of it. I was furious for a month and then relieved.

12me too 8

LuPreston, UK
#8

Gently disagreeing with Saoirse, or rather adding the other half of it.

Coming back two years on to say things are steady, that my cycles are regular for the first time in my adult life, and that I am still slightly astonished by it.

7

AnnaAthens, GR
#9

Somebody here pointed out that most of the general advice is written for people without this, and once I stopped trying to make it fit I did much better.

10

BobbieRochdale, UK
#10

Holding this with you rather than answering it.

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BrennaEnniskillen, NI
#11

Lu — yes, and the bit that took me longest to accept was the next part.

The dismissal is the part that lingers. The physical side has been manageable; being disbelieved for a decade is what I am still working through.

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RuaridhFort William, UK
#12

The hair side of things is its own subject and I found the general advice unhelpful because it did not account for the underlying picture at all.

8me too 3

MapleToronto, CA
#13

I have been under a specialist throughout and I would say that made an enormous difference compared to being managed generally.

11

MaritGroningen, NL
#14

What worked for me practically was resistance work twice a week. Not for any aesthetic reason — the effect on how I felt was noticeable within two months.

10

NadirCasablanca, MA
#15

I keep a very simple cycle note alongside everything else and the correlation is visible over a year in a way it never is over a month.

9me too 9

CloverTotnes, UK
#16

The question I wish I had asked earlier was what specifically we were aiming to change, because "improve" turned out to mean four different things to four clinicians.

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MiraFacilitatorRotterdam, Netherlands
#17

I want to slow this down. Several people here have the same diagnosis and quite different pictures, which is ordinary and is why the specifics change the answer.

21

DillyNewport, UK
#18

Clover has already said most of this and I want to add the one part that was different for me.

Nothing here is medical advice, and with this in particular the specialist who knows your history is worth more than any consensus in a thread.

12