PCOS, thyroid and this, all at once

Started 26 August 2024 · 14 replies · 173 hearts · read 3.5k times

MaritGroningen, NL · 26 August 2024

1.9 years ago

PCOS, thyroid and this, all at once Writing it down partly to work out what I actually think.

Some background first, because it matters for the question.

I have a specialist appointment in six weeks and I want to use it properly rather than spending it explaining background they already have.

I have brought this up at two appointments and been reassured both times without anybody actually looking at it, which is why I want to go in better prepared.

Not looking for interpretation of anything. Looking for what other people asked for and whether it helped.

MaeveSligo, IE

My experience of appointments improved enormously once I brought a written summary. Nine minutes is not enough time to retell fifteen years.

9me too 6

NkechiAbuja, NG

The insulin explanation was the thing that finally made the whole picture make sense to me, after years of it being presented as four unrelated problems.

MaryamBirmingham, UK

What I found is that my symptoms moved at different speeds. Some things changed in months and others have not changed at all in two years.

MiraFacilitatorRotterdam, Netherlands

I want to name the thing nobody has said: this is complicated, it is reasonable to find it complicated, and finding it complicated is not a failure to understand.

SorayaTehran, IR

No advice, only that you are not the only one who found this part hard.

ClemmieNorwich, UK

Maryam has already said most of this and I want to add the one part that was different for me.

I would gently say that if you are trying to conceive, this needs to be a proper planned conversation rather than something worked out from threads.

NadineLyon, FR

Picking up Mira’s point rather than starting a new one.

What worked for me practically was resistance work twice a week. Not for any aesthetic reason — the effect on how I felt was noticeable within two months.

TinukeManchester, UK

My cycles came back after years of nothing and it was genuinely emotional and I had absolutely nobody to tell until this circle.

10me too 7

GavinDundee, UK

The hair side of things is its own subject and I found the general advice unhelpful because it did not account for the underlying picture at all.

TildaCambridge, UK

#10

I have been under a specialist throughout and I would say that made an enormous difference compared to being managed generally.

IzzyWatford, UK

#11

Nothing here is medical advice, and with this in particular the specialist who knows your history is worth more than any consensus in a thread.

TansyLudlow, UK

#12

Somebody in this circle has almost certainly had your exact combination and will say so if you post it. That has been true every time I have watched somebody ask.

MiraFacilitatorRotterdam, Netherlands

#13

Speaking as a facilitator: a specialist who knows your history is worth more than any consensus in a thread, including a thread full of people with your diagnosis.

BrennaEnniskillen, NI

#14

Quietly agreeing from the other side of the country.

14me too 4