A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Side effect support

A frightening night and what the out-of-hours doctor said

Started 5 July 2024 · 22 replies · 277 hearts · read 2.3k times

CasperOdense, DK · 5 July 2024
2 years ago

A frightening night and what the out-of-hours doctor said Writing it down partly to work out what I actually think.

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down when it happens and how long it lasts, because I could not answer either of those questions when my GP asked and I felt foolish.

This started at the same time as two other things, which is why I cannot attribute it to anything with any confidence.

No advice needed if you would rather not. Recognition is genuinely enough.

92

BrimHalifax, UK
#1

My prescriber slowed my schedule down and most of it resolved within a month. I am not suggesting that for you. I am saying the conversation exists.

15

PersisBristol, UK
#2

Whatever it is, you are not being dramatic. Half the reason people end up frightened at midnight is that they talked themselves out of asking at four in the afternoon.

10me too 7

TomásFacilitatorLisbon, Portugal
#3

Holding for a second on a habit rather than on anybody: people in this circle call their own symptoms trivial, and they are usually not. If you have done it on this page, I would rather name it than let it go by.

27

PerrinNice, FR
#4

Persis has already said most of this and I want to add the one part that was different for me.

The thing that made mine manageable was accepting that a bad three days did not mean a bad month. I was extrapolating from every rough patch.

9

LarkGalway, IE
#5

Saying it out loud helps other people say it too. Thank you.

9me too 4

BaySt Ives, UK
#6

I want to offer the boring outcome for balance: mine was mild, it lasted a month, and it went. Not every account here needs to be dramatic.

12

NadirCasablanca, MA
#7

Gently disagreeing with Bay, or rather adding the other half of it.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

14

GwenBangor, UK
#8

Something I only worked out late: two mild things at once felt much worse than either would have on its own, and I kept trying to find a single cause.

8

VivLuton, UK
#9

Please do not read the comments under news articles about this. I lost a fortnight to that and came out of it knowing less than I went in with.

11

TaaviTallinn, EE
#10

For me the useful question was not what to do about it but how long it typically lasts, because that turned an unbounded problem into a bounded one.

13

RaviLeicester, UK
#11

My pharmacist was more use to me than anybody. Ten minutes at the counter, no appointment, no charge, and she spotted an interaction nobody else had mentioned.

8

NanNeath, UK
#12

There is a real difference between something unpleasant and something worrying, and if you cannot tell which yours is, that itself is a reason to ask somebody qualified.

13

MaudGhent, BE
#13

I found the anticipation harder than the symptom. Once I had had it twice and knew what it was, the third time barely registered.

9

HéloïseGeneva, CH
#14

This is why I read the boring weeks. Thank you for the boring weeks.

14me too 4

OsipTbilisi, GE
#15

I had one genuinely rough fortnight in two years. One. I say that because if you only read the difficult threads you will get a badly skewed picture.

12

MarenBremen, DE
#16

Coming back to what Héloïse wrote further up, because it is the bit I keep thinking about.

What I would ask is whether anything else changed in the same week. Mine turned out to be a completely unrelated thing that I had attributed to the medication for a month.

13

BrammyBelfast, NI
#17

What Héloïse described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and in my case it settled after about five weeks.

11me too 8

PeggyRotherham, UK
#18

I logged mine against the day of my week and the pattern was so clear that my prescriber changed one thing and it mostly went. The log did the work.

8

CasperOdense, DK
#19

Brammy, thank you for that. It gives me somewhere to start from.

Somebody here told me early on that the aim is to stay on treatment comfortably rather than to endure it, and that changed how quickly I raised things.

12

BrimHalifax, UK
#20

Mine did not settle and in the end I stopped, and that was the right decision for me. Both outcomes exist in this circle and neither is a failure.

10

TomásFacilitatorLisbon, Portugal
#21

I want to say that the honesty in this thread is exactly what makes this circle worth having, including the parts nobody enjoyed writing.

27

NilsUppsala, SE
#22

I keep a two-line note every day and it is the only reason I can answer questions about my own symptoms. Worth starting even now, mid-way through.

12me too 9