A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Side effect support

Sulphur burps and the world I did not want to know about

Started 2 April 2024 · 18 replies · 222 hearts · read 2.7k times

CasperOdense, DK · 2 April 2024
2.3 years ago

Something I have been sitting with: Sulphur burps and the world I did not want to know about Not looking for advice so much as other people's experience.

I have avoided asking about this for six weeks out of pure embarrassment.

Something is going on and I would like to know whether other people have had it, mostly so I know whether to raise it or wait it out.

I have written down when it happens and how long it lasts, because I could not answer either of those questions when my GP asked and I felt foolish.

It is not severe. It is relentless, which turns out to be a different problem, and one I have found much harder to describe to anybody.

Not after remedies particularly. Mostly I want to know whether this is ordinary and how long it went on for.

74

MaudGhent, BE
#1

The thing that made mine manageable was accepting that a bad three days did not mean a bad month. I was extrapolating from every rough patch.

10

LarkGalway, IE
#2

I keep a two-line note every day and it is the only reason I can answer questions about my own symptoms. Worth starting even now, mid-way through.

8

BrammyBelfast, NI
#3

Building on what Maud wrote rather than answering the original question.

My pharmacist was more use to me than anybody. Ten minutes at the counter, no appointment, no charge, and she spotted an interaction nobody else had mentioned.

12

TomásFacilitatorLisbon, Portugal
#4

Thank you for writing something this unglamorous down. Half this circle has had it and almost nobody says so, and you have just made the next thread easier for somebody.

14

NanNeath, UK
#5

I found the anticipation harder than the symptom. Once I had had it twice and knew what it was, the third time barely registered.

15

OsipTbilisi, GE
#6

Brammy said something I want to sit with for a second.

Mine was almost entirely about timing. Moving when I did it by two days changed the shape of my week completely and cost nothing.

12me too 7

PerrinNice, FR
#7

For me the useful question was not what to do about it but how long it typically lasts, because that turned an unbounded problem into a bounded one.

13

BaySt Ives, UK
#8

Please do not read the comments under news articles about this. I lost a fortnight to that and came out of it knowing less than I went in with.

10

PeggyRotherham, UK
#9

What I would ask is whether anything else changed in the same week. Mine turned out to be a completely unrelated thing that I had attributed to the medication for a month.

15me too 9

NilsUppsala, SE
#10

Perrin — yes, and the bit that took me longest to accept was the next part.

I had one genuinely rough fortnight in two years. One. I say that because if you only read the difficult threads you will get a badly skewed picture.

13

HéloïseGeneva, CH
#11

Coming back to what Bay wrote further up, because it is the bit I keep thinking about.

There is a list in the guides of the things that need somebody today rather than a thread, and I have sent it to about six people. It is worth reading before you need it.

16me too 1

VivLuton, UK
#12

What I found is that describing it precisely to myself was half the battle. Vague discomfort is frightening; a specific sensation at a specific time is a question with an answer.

11

MarenBremen, DE
#13

Somebody here told me early on that the aim is to stay on treatment comfortably rather than to endure it, and that changed how quickly I raised things.

12

BrimHalifax, UK
#14

Maren has already said most of this and I want to add the one part that was different for me.

Mine did not settle and in the end I stopped, and that was the right decision for me. Both outcomes exist in this circle and neither is a failure.

7

NadirCasablanca, MA
#15

Coming back a fortnight later to say mine settled, because I hate threads that stop halfway through somebody's difficult month.

7

TaaviTallinn, EE
#16

The hardest part for me was not the symptom, it was not knowing which category it belonged in. Ordinary tax, or something to raise this week. That distinction is most of what this circle does.

10me too 5

TomásFacilitatorLisbon, Portugal
#17

Gently: nobody in this circle is being dramatic. A symptom that is taking up your whole week is worth raising, and this circle will never tell you it is too small.

28

PersisBristol, UK
#18

Thank you for writing this down. It helped.

9