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Slow titrators

When to hold and when to move — how do you decide with your clinician

Started 17 October 2024 · 15 replies · 169 hearts · read 3.1k times

BevanSwansea, UK · 17 October 2024
1.8 years ago

When to hold and when to move — how do you decide with your clinician — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

The thing that has surprised me most about this stage is how much of it is about other people rather than about me.

I want to write this down while I am still in it, because I have noticed that I rewrite these stages afterwards into something more sensible than they were.

What I keep tripping on is not knowing whether where I am is where I should be at this point, and having nobody to ask who is not either selling something or worried about me.

Thanks all. Genuinely. This circle has been better company than I expected to find anywhere.

56

FlorrieBlackburn, UK
#1

I do not think going slowly is universally better. I think it was better for me, and I am very cautious about turning my experience into anybody's rule.

14

GwennoPwllheli, UK
#2

I asked my prescriber directly what the cost of going slowly was and she said, in effect, time. That was a trade I was happy to make once it was stated plainly.

12

TomásFacilitatorLisbon, Portugal
#3

A reminder that this circle holds every stage at once, which is its strength and occasionally its difficulty. Somebody in year three answering somebody in week three needs to say which they are.

25me too 5

HalCambridge, UK
#4

I found I needed about three weeks at each step before I knew what that step was like. Two weeks always gave me a half-formed impression that I then acted on.

10

BroganCumbernauld, UK
#5

The one thing I would say is to write down why you are holding where you are. Six weeks later I could never remember whether it had been a symptom, a work trip or just nerves.

8

BrammyBelfast, NI
#6

Coming back to what Hal wrote further up, because it is the bit I keep thinking about.

My honest reason for going slowly is that I have a job I cannot be unwell in, and that is a perfectly respectable reason that I no longer apologise for.

13

IdrisCardiff, UK
#7

Every step up for me came with about ten days of adjustment and then nothing. Knowing that the ten days were coming made them much easier to sit through.

6

DoraUtrecht, NL
#8

Going slowly did not stop things changing for me. It just meant the changes arrived one at a time and I could see each one.

10

GwynethAberdare, UK
#9

Reading Brammy, I recognised more of that than I expected to.

I have been at the same step for eleven months, agreed with my prescriber, and it is the best decision I have made in this whole business. Slow was not a compromise, it was the plan.

9me too 8

GwendaEbbw Vale, UK
#10

Coming back a year later to say the slow route held. I am still on treatment, still comfortable, still having ordinary weeks. That was the entire point of going slowly.

7

BevanSwansea, UK
#11

I went back down a step once, deliberately, and it was not a failure. It was the most sensible fortnight of the year and my prescriber agreed without hesitation.

15

FlorrieBlackburn, UK
#12

Gwenda has already said most of this and I want to add the one part that was different for me.

The thing that finally let me relax was realising that staying put is an active choice with a reason behind it, not a lack of a decision.

8

GwennoPwllheli, UK
#13

Slow titration is not the cautious version of this. For some of us it is simply the version that works, and I have stopped framing it as a hedge.

11me too 9

TomásFacilitatorLisbon, Portugal
#14

Before anyone offers a schedule: what has been described here is a conversation for a prescriber rather than a thread. I am going to be firm about that, kindly.

14

HalCambridge, UK
#15

I have watched people here move at four times my pace and do beautifully, and others move at half my pace and do beautifully. There is no schedule that is correct in the abstract.

7