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Slow titrators

Slow is boring and boring is working

Started 10 July 2024 · 24 replies · 284 hearts · read 4.4k times

GwendaEbbw Vale, UK · 10 July 2024
2 years ago

Starting a thread on this because it keeps coming up in ones and twos: Slow is boring and boring is working

I have been reading here for a few weeks and have not posted, so this is me posting.

I have read the guides here, which were more useful than anything else I have found, and I still have a question about the timing that they do not cover.

My honest position is that I do not know whether to change something or wait, and I have been going round that question for three weeks without getting anywhere.

No rush on replies. I am not going anywhere and neither, apparently, is this stage.

95

BrammyBelfast, NI
#1

My prescriber described the aim as staying on treatment comfortably rather than reaching a particular step, and once I heard it that way the pressure evaporated.

8me too 6

IdrisCardiff, UK
#2

I have been at the same step for eleven months, agreed with my prescriber, and it is the best decision I have made in this whole business. Slow was not a compromise, it was the plan.

15

BevanSwansea, UK
#3

I asked my prescriber directly what the cost of going slowly was and she said, in effect, time. That was a trade I was happy to make once it was stated plainly.

10

TomásFacilitatorLisbon, Portugal
#4

Something worth noticing whenever it happens in a thread like this: somebody puts down the difficult version rather than the tidy one, and nobody flinches. That is not automatic and it is most of what we are for.

27

GwennoPwllheli, UK
#5

I hold at a step for as long as it is still teaching me something. When a step gets boring, that is usually my sign to talk about the next one.

9

GwynethAberdare, UK
#6

Bevan, thank you for that. It gives me somewhere to start from.

A practical note: I keep a single line per step with the date I started it and the date anything settled. It is the most useful piece of paper I own for these conversations.

11me too 9

BroganCumbernauld, UK
#7

Somebody asked me whether slow titration is just fear management, and honestly, partly. It is also symptom management and life management, and I have stopped ranking those.

10

DoraUtrecht, NL
#8

Same here, and I am glad you said it first.

13

HeddaCopenhagen, DK
#9

I went back down a step once, deliberately, and it was not a failure. It was the most sensible fortnight of the year and my prescriber agreed without hesitation.

12

HalCambridge, UK
#10

Brogan has already said most of this and I want to add the one part that was different for me.

The thing that finally let me relax was realising that staying put is an active choice with a reason behind it, not a lack of a decision.

7

GwendaEbbw Vale, UK
#11

Gently disagreeing with Hal, or rather adding the other half of it.

Going up slowly meant I could actually tell what each change did. When I moved faster at the start, everything happened at once and I could not attribute anything to anything.

14

BrammyBelfast, NI
#12

The schedule on the box is a default, not a deadline. My nurse said that in my second month and it reorganised how I thought about the whole thing.

7

IdrisCardiff, UK
#13

What worked for me was agreeing a review point rather than a step-up date. We would look at it in eight weeks and decide then, which took the whole thing out of my head in the meantime.

12

BevanSwansea, UK
#14

Reading this properly rather than skimming, which is all I have to offer today.

10

FlorrieBlackburn, UK
#15

I would gently add that slow is not the same as stalled. I moved twice this year, both times deliberately, both times after a conversation. That is progress with a handbrake, not no progress.

10

GwennoPwllheli, UK
#16

Florrie said something I want to sit with for a second.

Whenever somebody new arrives worried about being slow, I say the same thing: nobody in this circle is going to be impressed by speed, and nobody is keeping score.

7

GwynethAberdare, UK
#17

Florrie, thank you for that. It gives me somewhere to start from.

I stayed where I was for four months because it suited me there, and the only pressure to move came from me. Not from my prescriber, and certainly not from anybody here.

11me too 4

BroganCumbernauld, UK
#18

Coming back a year later to say the slow route held. I am still on treatment, still comfortable, still having ordinary weeks. That was the entire point of going slowly.

9

DoraUtrecht, NL
#19

This is the post I wish had existed when I was looking for it.

8

HeddaCopenhagen, DK
#20

Nine months at one step here and my prescriber has never once suggested moving. She said the schedule is a scaffold and I am not obliged to climb it.

12

HalCambridge, UK
#21

I found I needed about three weeks at each step before I knew what that step was like. Two weeks always gave me a half-formed impression that I then acted on.

10

GwendaEbbw Vale, UK
#22

Somebody in this circle described their pace as "geological" and I have thought about that phrase very fondly ever since. Mine is similar and nobody minds.

12me too 6

TomásFacilitatorLisbon, Portugal
#23

Adding a note rather than an answer: the guides cover the practical side of this stage well, and the thing this thread is doing that the guides cannot is keeping somebody company.

25

IdrisCardiff, UK
#24

The one thing I would say is to write down why you are holding where you are. Six weeks later I could never remember whether it had been a symptom, a work trip or just nerves.

15