Levothyroxine timing around everything else

Started 9 January 2025 · 18 replies · 209 hearts · read 1.7k times

GusStirling, UK · 9 January 2025

1.5 years ago

A question rather than an update: Levothyroxine timing around everything else

Something is going on with my body and I would like to know whether it is ordinary.

Something is going on and I would like to know whether other people have had it, mostly so I know whether to raise it or wait it out.

The physical part is manageable. What is wearing me down is the constant low-level monitoring of it, and I would like to stop doing that.

What I cannot tell is whether this is the ordinary tax or the sort of thing that needs somebody today, and that distinction is the whole of my question.

Not after remedies particularly. Mostly I want to know whether this is ordinary and how long it went on for.

ÖzlemIzmir, TR

The wait between the blood draw and the result is the hard part, and I have never found a way to make that easier other than not thinking about it, badly.

MiraFacilitatorRotterdam, Netherlands

I am going to steer us away from comparing severity. It has crept in over the last few replies and it does not help anybody who is currently in it.

29me too 7

BryonyMalvern, UK

Gently disagreeing with Özlem, or rather adding the other half of it.

My hair shedding turned out to be thyroid-related rather than anything else, and correcting it fixed the shedding within about four months.

GaelanInverurie, UK

What helped was one clinician taking ownership of the whole picture. Before that I had two people each managing half of me.

TansyLudlow, UK

Bryony, thank you for that. It gives me somewhere to start from.

I take mine at a completely different time of day now and it is the only change that was needed. Very small, very effective.

7me too 2

LlianCarmarthen, UK

What I did not know was that a change in one thing can move the numbers in the other, and that is expected rather than alarming.

MinnieDoncaster, UK

Somebody in this circle told me to write down my questions in order of how much they mattered, because appointments run out of time. Best advice I have had for these reviews.

PerlaManila, PH

Mine needed one adjustment in two years and it was routine. I had expected constant tinkering.

GrizelKirkcaldy, UK

What I would flag is that a new symptom is worth mentioning to both teams rather than deciding for yourself which one it belongs to.

MaudGhent, BE

#10

Nothing useful, just that I have been exactly here.

PersisBristol, UK

#11

My results have been stable throughout and I am told that is common. I mention it because the threads that get written are usually the ones where something changed.

10me too 9

Bryn MNeath, UK

#12

What Grizel described happened to me too, in a slightly different order.

The absorption question was the one I could not get a straight answer to for a long time, and my endocrinology nurse eventually gave me a very clear one.

PerryCardigan, UK

#13

Recognition rather than advice, if that is any use at all.

GusStirling, UK

#14

Mine was diagnosed years before any of this and I have found the two entirely manageable together, which is a boring but real report.

ÖzlemIzmir, TR

#15

The most useful thing I did was book the bloods and the review as a pair, so I never sat on a result for three weeks waiting to discuss it.

10me too 4

PrueChester, UK

#16

I did not know until this circle that a recheck at a set interval was standard. I had been assuming somebody would call me if something looked wrong.

MiraFacilitatorRotterdam, Netherlands

#17

Speaking plainly as a facilitator: none of this is medical advice, none of us is qualified to give any, and that limit is what makes the rest of what we do honest.

GaelanInverurie, UK

#18

Reading Prue, I recognised more of that than I expected to.

Nothing here is medical advice and this is a subject where that matters more than usual, because the numbers genuinely need somebody qualified reading them.