My TSH moved and my GP adjusted the dose

Started 21 November 2024 · 19 replies · 239 hearts · read 4.1k times

MinnieDoncaster, UK · 21 November 2024

1.7 years ago

My TSH moved and my GP adjusted the dose Writing it down partly to work out what I actually think.

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

The physical part is manageable. What is wearing me down is the constant low-level monitoring of it, and I would like to stop doing that.

I have read the guide on this and it covered the ordinary version. Mine is not quite the ordinary version and that is why I am asking.

I will come back and say what my appointment produced, because I hate reading threads that stop before the answer.

PerlaManila, PH

Coming back after my recheck to say everything was unremarkable and no change was needed. Leaving it here for the next person searching this circle at midnight.

MiraFacilitatorRotterdam, Netherlands

A note for anybody arriving at this thread mid-way: if what you are experiencing is frightening rather than merely uncomfortable, that is a reason to ask somebody qualified this week rather than to read further.

21me too 8

Bryn MNeath, UK

Replying to Minnie rather than to anybody above, because I want to answer what was actually asked.

I did not know until this circle that a recheck at a set interval was standard. I had been assuming somebody would call me if something looked wrong.

BryonyMalvern, UK

Nothing here is medical advice and this is a subject where that matters more than usual, because the numbers genuinely need somebody qualified reading them.

GrizelKirkcaldy, UK

Gently disagreeing with Mira, or rather adding the other half of it.

What I would say is to get a baseline set of bloods before starting if you possibly can. Mine were eight months old and it made interpreting the later ones much harder.

ÖzlemIzmir, TR

I had assumed tiredness was one thing and it turned out to be the other, and the only way anybody found out was by testing rather than reasoning.

PerryCardigan, UK

My levels shifted and needed rechecking, which my endocrinologist had told me to expect and my GP had not. Worth knowing in advance.

LlianCarmarthen, UK

The timing of when I take mine relative to everything else mattered, and a pharmacist sorted it out in one conversation after months of me guessing.

GaelanInverurie, UK

Perry — yes, and the bit that took me longest to accept was the next part.

I found a nurse-led clinic that handles the reviews and it is far more thorough than any GP appointment I have had on this.

PersisBristol, UK

#10

What I would flag is that a new symptom is worth mentioning to both teams rather than deciding for yourself which one it belongs to.

PrueChester, UK

#11

Building on what Llian wrote rather than answering the original question.

I would say do not adjust anything yourself on the basis of how you feel. I nearly did and my nurse was very clear about why that was a bad idea.

TansyLudlow, UK

#12

The symptom overlap is genuinely difficult. Tiredness, cold, mood, hair — all of those belong to both stories and none of them tells you which.

MaudGhent, BE

#13

Something worth asking: which specific tests are being run. Mine had been getting one for years and the fuller panel answered a question that had been open for ages.

15me too 3

MinnieDoncaster, UK

#14

Gently disagreeing with Tansy, or rather adding the other half of it.

My GP rechecked at twelve weeks as a matter of routine and adjusted, and the whole thing was much less eventful than I had braced for.

PerlaManila, PH

#15

The wait between the blood draw and the result is the hard part, and I have never found a way to make that easier other than not thinking about it, badly.

GusStirling, UK

#16

No advice, just company. Here if it helps.

11me too 7

Bryn MNeath, UK

#17

My hair shedding turned out to be thyroid-related rather than anything else, and correcting it fixed the shedding within about four months.

MiraFacilitatorRotterdam, Netherlands

#18

Facilitator note: pharmacists are the most underused people in this whole business and several of the questions on this page are ones they answer in ten minutes at a counter.

GrizelKirkcaldy, UK

#19

My results have been stable throughout and I am told that is common. I mention it because the threads that get written are usually the ones where something changed.