Coming off insulin entirely, slowly, with my team

Started 1 June 2026 · 11 replies · 67 hearts · read 1.2k times

NoahHull, UK · 1 June 2026

2 months ago

Something I have been sitting with: Coming off insulin entirely, slowly, with my team Not looking for advice so much as other people's experience.

Some background first, because it matters for the question.

I would like to know what other people in this position asked for, because I do not think I am asking for the right things.

I am asking because the evidence for my particular combination seems thin, and I would rather hear that plainly than be reassured about it.

What has changed is small and I only noticed because I keep records, and I cannot decide whether small and consistent is worth raising.

Thanks all. This circle is the only place I have found where I do not have to explain the background first.

FlossieShrewsbury, UK

I have had this for eleven years and the last two have been the most straightforward, and the difference is mostly that somebody finally explained the mechanism to me.

TommieEly, UK

Flossie said something I want to sit with for a second.

What helped was asking my nurse what she would want to see in six months, and then organising the six months around that rather than around vague improvement.

BirdieMargate, UK

Building on what Tommie wrote rather than answering the original question.

Something I did not expect: the appointments got easier because I had something to bring to them. Before, I was being told; now, we are discussing.

MiraFacilitatorRotterdam, Netherlands

Stepping in to redirect towards the original question, which was narrower than the discussion has become and has not been answered yet.

8me too 2

NixLeith, UK

Birdie has already said most of this and I want to add the one part that was different for me.

I found that the nurse-led review was more thorough and more useful than the GP appointment, and it is the one I now prepare for.

FenEly, UK

What I got wrong was chasing individual readings. The trend over three months was the only thing that ever meant anything.

SamPortland, OR

My retinal screening and foot check carried on exactly as before, and I mention that because I had half assumed things would change and they did not.

4me too 6

HarriSwansea, UK

The hypo question is a real one if you are on certain other things, and it needed a specific conversation rather than a general reassurance.

MossHebden Bridge, UK

Fen has already said most of this and I want to add the one part that was different for me.

Nine minutes twice a year is not enough to cover this and I stopped pretending it was. I bring a printed page now and we get through four times as much.

6me too 7

MiraFacilitatorRotterdam, Netherlands

#10

Facilitator note: being dismissed for years is a real experience and it does something to how you approach every subsequent appointment. It is welcome as a subject here.

HuwWrexham, UK

#11

The long game is the actual subject. Everything I have got right came from doing something small consistently rather than something large for six weeks.