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Coming off

Off it for eight months and considering going back

Started 14 January 2025 · 19 replies · 218 hearts · read 3.5k times

BronLincoln, UK · 14 January 2025
1.5 years ago

A question rather than an update: Off it for eight months and considering going back

I have been reading here for a few weeks and have not posted, so this is me posting.

I have a review coming up and I would like to arrive with a proper account of this stage rather than the vague description I gave last time.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers a whole stage of this.

I have put eight months in the title because that is the number I keep coming back to, and I would rather be specific than vague about it.

No rush on replies. I am not going anywhere and neither, apparently, is this stage.

73

FenEly, UK
#1

I stopped twice. The first time badly and alone, the second time properly and with support. The second one is the one I would describe as coming off.

11

TedIpswich, UK
#2

If you are reading this while deciding, the only thing I would push on is: is anybody clinical in the loop. Everything else is genuinely yours to weigh.

13

BenediktFacilitatorVienna, Austria
#3

Gently noting that we have three people offering different schedules and none of us is prescribing. Descriptions of what happened to you are welcome; instructions are not.

19

NikoTbilisi, GE
#4

I came off because of cost, not because of anything clinical, and it took me a long time to say that without embarrassment. It is an extremely common reason and it is not a moral failing.

12me too 3

GudrunAkureyri, IS
#5

I would have written the same thing a year ago, word for word.

12

SinéadCork, IE
#6

Building on what Benedikt wrote rather than answering the original question.

Honest note: my first month off was much better than I had feared and my third month was much harder. The order surprised me.

6

TressaSt Austell, UK
#7

My reason was that I no longer wanted to be doing it, which felt like an insufficient reason until my prescriber said it was a perfectly good one.

13me too 9

FabianBasel, CH
#8

The thing that made it manageable was that nothing about the decision was final. Reviewing it in three months was always an option and knowing that took the weight out of it.

9

Birdie BWhitstable, UK
#9

Gently disagreeing with Tressa, or rather adding the other half of it.

Something practical: I kept everything — the notes, the dates, the letters — for a year after stopping. It made the eventual conversation about restarting take four minutes instead of forty.

10

DashSeattle, WA
#10

The grief part surprised me. I had not expected to grieve a medication and I did, for about a month, and then it passed.

11me too 9

BastianFreiburg, DE
#11

I would say do not stop in a difficult week if you can possibly help it. My decision was sound and the timing was terrible and the timing is what made it hard.

11me too 7

TillyHereford, UK
#12

What I noticed after stopping was that the habits stayed longer than I expected and then quietly went. That was useful information about which habits had been mine.

9

IdaRotterdam, NL
#13

I came off during a pregnancy, on advice, and it was straightforward clinically and complicated emotionally, and I did not find anywhere to say that until this circle.

14

TanviMumbai, IN
#14

Tilly said something I want to sit with for a second.

Coming back a year after stopping to say that I am well, that it was the right decision for me, and that I still read here every week.

12

GabePhoenix, AZ
#15

Mine was a planned stop with my prescriber over about four months. Having a plan made the difference between a decision and a collapse.

5

BramwellRipon, UK
#16

Gently disagreeing with Gabe, or rather adding the other half of it.

The thing nobody told me is that stopping is a process with its own weeks in it. I had expected a date and got a season.

9

DelythBala, UK
#17

What Gabe described happened to me too, in a slightly different order.

Six months off and I am fine. Different, and fine. I came back to this circle to say so because when I was leaving I could not find anybody who had.

7

BenediktFacilitatorVienna, Austria
#18

Facilitator note: this circle is deliberately quiet about numbers and a couple of replies have started to drift that way. Nothing wrong intended and I am steering us back.

23

FenEly, UK
#19

I would gently suggest keeping your journal going through the stopping. Mine is the only reason I know what actually happened in those months rather than what I remember happening.

12