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Coming off

I stopped at week nine and here is why

Started 19 September 2024 · 24 replies · 284 hearts · read 5.4k times

FabianBasel, CH · 19 September 2024
1.8 years ago

I stopped at week nine and here is why Writing it down partly to work out what I actually think.

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has happened, in order, because I find that more useful than my own summary of it. The summary always sounds either better or worse than the weeks actually were.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers a whole stage of this.

I have been specific in the title on purpose. Nine is what it is, and being vague about it has not helped me so far.

Sorry for the length. If anybody has been at this point, I would very much like to hear how it went.

95

FenEly, UK
#1

I stopped and did not go back, and I am at peace with it, and I would not present that as a recommendation to anybody. It was my situation and my body.

15

BenediktFacilitatorVienna, Austria
#2

Speaking as a facilitator rather than as a member: what has been described is well within the ordinary range, and the only person who can say so about your body is the one who knows it.

20

Birdie BWhitstable, UK
#3

Reading Benedikt, I recognised more of that than I expected to.

Something practical: I kept everything — the notes, the dates, the letters — for a year after stopping. It made the eventual conversation about restarting take four minutes instead of forty.

14

GudrunAkureyri, IS
#4

The grief part surprised me. I had not expected to grieve a medication and I did, for about a month, and then it passed.

9me too 4

DashSeattle, WA
#5

I would gently suggest keeping your journal going through the stopping. Mine is the only reason I know what actually happened in those months rather than what I remember happening.

9

TedIpswich, UK
#6

Reading and nodding. Nothing to add, and I wanted you to know somebody had read it.

10

NikoTbilisi, GE
#7

The circle carried me through the first eight weeks after stopping more than anything else did. Nothing anybody said, particularly. The turning up.

12me too 1

TressaSt Austell, UK
#8

What helped me was deciding in advance what I would do if things changed after stopping, so that I was not making that decision from inside a difficult month.

8

SinéadCork, IE
#9

My reason was that I no longer wanted to be doing it, which felt like an insufficient reason until my prescriber said it was a perfectly good one.

11me too 4

BastianFreiburg, DE
#10

Building on what Niko wrote rather than answering the original question.

The thing that made it manageable was that nothing about the decision was final. Reviewing it in three months was always an option and knowing that took the weight out of it.

13

GabePhoenix, AZ
#11

What I would say to anybody considering it is to have the conversation before you decide rather than after. My prescriber had two options I had not known existed.

12

BryonyMalvern, UK
#12

I stopped, and about six weeks later the background hum came back, and that was the part I was least prepared for. Not the physical side. The noise.

10

DelythBala, UK
#13

Nobody here is going to think less of you for stopping. That was my genuine fear when I posted about it, and it was completely unfounded.

14

IdaRotterdam, NL
#14

Same here, and I am glad you said it first.

7me too 4

TillyHereford, UK
#15

The practical thing I got right was writing down why I was stopping while I was still on it. Two months later I could not have reconstructed my own reasoning.

12

BramwellRipon, UK
#16

Coming back to what Delyth wrote further up, because it is the bit I keep thinking about.

Mine was a side-effect decision, taken carefully, with two conversations and a proper look at the alternatives first. It was the right call and it was still sad.

8

BronLincoln, UK
#17

Bramwell, thank you for that. It gives me somewhere to start from.

What I found hardest was other people treating it as a failure while my prescriber treated it as a normal clinical decision. Their reaction was the difficult part, not the decision.

15me too 8

FabianBasel, CH
#18

I stopped because my prescriber said so, which is a very different experience from choosing it, and it took me longer to make peace with because it was not mine.

8

FenEly, UK
#19

Bramwell, thank you for that. It gives me somewhere to start from.

Six months off and I am fine. Different, and fine. I came back to this circle to say so because when I was leaving I could not find anybody who had.

12

TanviMumbai, IN
#20

The tapering conversation was more nuanced than I expected. It was not simply stop or continue; there were several shapes in between and I had not known that.

10

Birdie BWhitstable, UK
#21

I came off for eight months and went back on, and I want both halves of that on the record because threads that only cover the leaving are only half a story.

14me too 8

GudrunAkureyri, IS
#22

My stop was abrupt because of a supply problem rather than a choice, and I want to name that as its own category. It happens and it is nobody's decision.

9

TedIpswich, UK
#24

Sitting with you on this one.

6