The near-miss thread I keep sending people

Started 15 October 2024 · 20 replies · 252 hearts · read 3.5k times

MaeveSligo, IE · 15 October 2024

1.8 years ago

Something I have been sitting with: The near-miss thread I keep sending people Not looking for advice so much as other people's experience.

I have a letter in front of me and I do not know what it actually says.

I would rather hear from somebody whose appeal failed as well as from somebody whose succeeded, because I want to know what I am walking into.

Money post. No apologies, this circle is for it, and I would like actual figures rather than reassurance if anybody is willing.

I have a letter in front of me and I genuinely cannot tell what it is saying, which I suspect is not entirely accidental.

No judgement wanted and none expected in this circle, which is why I am asking here.

NúriaBarcelona, ES

My prescriber was very careful about this specifically, and I have since learned that not everybody's is, so please do ask.

RuaridhFort William, UK

The question I asked that mattered most was whether the number I had been given was in the same units as before. It was not.

10me too 3

DevManchester, UK

Nothing here is medical advice, and on this subject in particular the arithmetic needs a pharmacist rather than a thread.

PetraFacilitatorMelbourne, Australia

I want to name what pausing gets met with here: recognition rather than concern. That is the right response, it is not the usual one elsewhere, and it is why people say so in this circle at all.

SunnivaBodø, NO

Recognition rather than advice, if that is any use at all.

14me too 7

XanBerlin, DE

Coming back to say the switch went fine, that it took about six weeks to feel routine, and that the double-check is what made it safe.

AurelBucharest, RO

Gently disagreeing with Xan, or rather adding the other half of it.

What I would say is do not assume anything transfers. Treat it as a completely new start with a completely new conversation.

OrlaithDonegal, IE

My pharmacist caught the error before I did and I have thought about that a great deal since. Ten minutes at a counter.

BoazHaarlem, NL

I had a proper appointment specifically about the switch rather than folding it into a routine review, and that was the right call.

MaeveSligo, IE

#10

The units on the two were not comparable and I had spent an evening doing arithmetic that turned out to be meaningless.

NúriaBarcelona, ES

#11

Concentrations differ and that is exactly where people get caught. Nothing carried over from my previous arrangement, not a single number.

RuaridhFort William, UK

#12

Something practical: I wrote down exactly what I had been on, in the exact terms it was described, and handed that over rather than summarising.

11me too 2

DevManchester, UK

#13

Ruaridh has already said most of this and I want to add the one part that was different for me.

What surprised me was how much better the new device was to use, which was not a factor I had considered at all.

SaskiaThe Hague, NL

#14

My prescriber restarted me lower than I had been, deliberately, and it was uneventful and I am glad she did.

SunnivaBodø, NO

#15

This is why I read the boring weeks. Thank you for the boring weeks.

XanBerlin, DE

#16

What I found is that the devices were different enough that the practical routine had to be relearned, which nobody had mentioned.

AurelBucharest, RO

#17

The thing I would flag is that a number that looks the same may not mean the same thing, and checking that is the whole job.

OrlaithDonegal, IE

#18

Aurel — yes, and the bit that took me longest to accept was the next part.

I felt like new again for about three weeks and then it settled, and I had not expected any adjustment period at all.

PetraFacilitatorMelbourne, Australia

#19

Facilitator note: nobody in this circle is asked to justify what they can or cannot afford, and nobody is asked to explain what they spend the rest of it on.

MaeveSligo, IE

#20

Something I got right was asking my pharmacist to talk me through the new one properly rather than reading the leaflet at home.