Something I have been sitting with: The plateau ended and I do not know why Not looking for advice so much as other people's experience.
Writing this partly to ask and partly because writing it down usually tells me what I think.
The practical side has settled and the rest of it has not, and I would like to hear how other people at this stage handled the part that is not practical.
Here is where I actually am. The medicine side has been more or less as described; the part nobody prepared me for is everything around it — what to say to people, how to plan a week, and how to tell an ordinary stage from one worth raising.
My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers a whole stage of this.
Not looking for a plan. Just company, and whatever anybody found at the same stage.
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