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Type 2

Renal function figures that frightened me until they were explained

Started 25 February 2025 · 17 replies · 167 hearts · read 2.1k times

MaryamBirmingham, UK · 25 February 2025
1.4 years ago

Renal function figures that frightened me until they were explained Writing it down partly to work out what I actually think.

Bringing this here rather than to the general circle because the specifics change the answer.

I have brought this up at two appointments and been reassured both times without anybody actually looking at it, which is why I want to go in better prepared.

Nobody in my life has this combination and I have never met anybody who does, which is most of why I am writing it here.

I have written out my results as a series rather than as single figures, because the trend is where my question actually lives.

I will report back after my specialist appointment, because there is not much written about this and I would like to add to it.

56

CassWakefield, UK
#1

Something I did not expect: the appointments got easier because I had something to bring to them. Before, I was being told; now, we are discussing.

10

EphraimBrooklyn, NY
#2

Reading Cass, I recognised more of that than I expected to.

My monitor showed the shape of my day in a way that no periodic test ever had, and that was the thing that changed what I actually did.

8me too 2

RuthieLeicester, UK
#3

Gently disagreeing with Cass, or rather adding the other half of it.

I had to have a proper conversation about my other medications, because a couple of them needed reviewing once things started changing. Do not leave that to chance.

11

MiraFacilitatorRotterdam, Netherlands
#4

Facilitator note: writing a one-page summary of your history to hand over has come up three times in this circle this year and it is genuinely good advice.

16

BridieWexford, IE
#5

Ephraim, thank you for that. It gives me somewhere to start from.

What I would say is get clear on what is being measured and what the target is, because I spent two years watching a figure I had misunderstood.

9

RafeBordeaux, FR
#6

My numbers moved over about five months and my GP was noticeably pleased, which after years of slightly tense appointments was a strange and good experience.

6

MinnieDoncaster, UK
#7

Nine minutes twice a year is not enough to cover this and I stopped pretending it was. I bring a printed page now and we get through four times as much.

12me too 7

BexPlymouth, UK
#8

Coming back after my annual review to say everything was steady, nothing needed changing, and the appointment lasted eleven minutes and was pleasant.

10

SadieSalford, UK
#9

My experience is that steady beats dramatic. The month I did everything perfectly is not visible in my results and the two boring years are.

5

LuPreston, UK
#10

Thank you for writing this down. It helped.

10

SolomonManchester, UK
#11

The thing that surprised me was how much sleep affected my morning numbers. Nothing to do with food at all and it took me a year to notice.

9me too 4

RayBarnsley, UK
#12

I would say that if you have been managing this a long time, your own knowledge is genuinely worth something in the appointment. Mine was welcomed once I offered it.

5

SorayaTehran, IR
#13

Bookmarking this. Thank you.

11

FenEly, UK
#14

Solomon, thank you for that. It gives me somewhere to start from.

My results improved and then a stressful winter undid some of it, and my nurse was completely unbothered and said that is what the long game means.

7

HuwWrexham, UK
#15

What I got wrong was chasing individual readings. The trend over three months was the only thing that ever meant anything.

9

MiraFacilitatorRotterdam, Netherlands
#16

Gently: a test that comes up often in this circle is worth asking about, and not one of us can say whether it is right for you. That is the line and it does not move.

22

RonanBelfast, NI
#17

Gently disagreeing with Fen, or rather adding the other half of it.

Something practical: I wrote down the three questions before going in, every time, and I have never once remembered them otherwise.

7