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Type 2

Nine minutes with the diabetes nurse — what I took in

Started 25 May 2024 · 21 replies · 250 hearts · read 4.5k times

RonanBelfast, NI · 25 May 2024
2.2 years ago

Something I have been sitting with: Nine minutes with the diabetes nurse — what I took in Not looking for advice so much as other people's experience.

Bringing this here rather than to the general circle because the specifics change the answer.

I have had this diagnosis a long time and none of the general guidance quite fits, which is why I am asking here rather than in the wider circles.

I have two clinicians who each manage half of me and neither of them has seen the whole picture, which is how I ended up asking a support community.

I have brought this up at two appointments and been reassured both times without anybody actually looking at it, which is why I want to go in better prepared.

To be precise about it, since I have put it in the title: nine minutes. I counted rather than guessed, because a guess would have been kinder to me.

Thank you for reading all the background. I know it is a lot and I think it changes the answer.

83

OdileMontreal, CA
#1

Something I did not expect: the appointments got easier because I had something to bring to them. Before, I was being told; now, we are discussing.

11

GwendaEbbw Vale, UK
#2

Reading Odile, I recognised more of that than I expected to.

My monitor showed the shape of my day in a way that no periodic test ever had, and that was the thing that changed what I actually did.

15me too 3

MiraFacilitatorRotterdam, Netherlands
#3

Speaking as a facilitator: a specialist who knows your history is worth more than any consensus in a thread, including a thread full of people with your diagnosis.

24

MarkCoventry, UK
#4

The long game is the actual subject. Everything I have got right came from doing something small consistently rather than something large for six weeks.

5

OzzyAdelaide, AU
#5

Building on what Mira wrote rather than answering the original question.

My retinal screening and foot check carried on exactly as before, and I mention that because I had half assumed things would change and they did not.

10me too 7

DuncanPerth, UK
#6

The hypo question is a real one if you are on certain other things, and it needed a specific conversation rather than a general reassurance.

12

SunnivaBodø, NO
#7

I have had this for eleven years and the last two have been the most straightforward, and the difference is mostly that somebody finally explained the mechanism to me.

9

RowanInverness, UK
#8

What helped was asking my nurse what she would want to see in six months, and then organising the six months around that rather than around vague improvement.

14

NadiaCairo, EG
#9

My experience is that steady beats dramatic. The month I did everything perfectly is not visible in my results and the two boring years are.

6

CatoAntwerp, BE
#10

Something practical: I wrote down the three questions before going in, every time, and I have never once remembered them otherwise.

11

TamsinRedruth, UK
#11

What I got wrong was chasing individual readings. The trend over three months was the only thing that ever meant anything.

10

RillaAberdeen, UK
#12

Cato, thank you for that. It gives me somewhere to start from.

I found that the nurse-led review was more thorough and more useful than the GP appointment, and it is the one I now prepare for.

13

RomyVienna, AT
#13

Rilla, thank you for that. It gives me somewhere to start from.

The thing that surprised me was how much sleep affected my morning numbers. Nothing to do with food at all and it took me a year to notice.

9

FlorrieBlackburn, UK
#14

I would say that if you have been managing this a long time, your own knowledge is genuinely worth something in the appointment. Mine was welcomed once I offered it.

14

IkeChicago, IL
#15

What changed for me was a dietitian appointment I had turned down twice. Forty minutes, extremely practical, and it reorganised how I ate for good.

10me too 7

JontyOxford, UK
#16

My results improved and then a stressful winter undid some of it, and my nurse was completely unbothered and said that is what the long game means.

14

ObiLagos, NG
#17

The vocabulary took me years to learn and nobody offered to teach it. Asking what a word meant, out loud, in an appointment, was the best habit I picked up.

8

GwynethAberdare, UK
#18

Reading and nodding. Nothing to add, and I wanted you to know somebody had read it.

15

SolomonManchester, UK
#19

I had to have a proper conversation about my other medications, because a couple of them needed reviewing once things started changing. Do not leave that to chance.

13

MiraFacilitatorRotterdam, Netherlands
#20

Holding a boundary kindly: we do not compare results in this circle. A couple of replies have edged that way and I am steering us back.

17

GigiNaples, IT
#21

I have found this circle useful mostly for the appointment craft rather than the clinical side. How to ask, what to bring, what to write down.

10me too 7