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Maintenance

Maintenance is boring and I mean that as praise

Started 23 March 2025 · 16 replies · 166 hearts · read 2.2k times

TillyHereford, UK · 23 March 2025
1.3 years ago

Maintenance is boring and I mean that as praise Writing it down partly to work out what I actually think.

I do not know if this belongs in this circle. Move me if not.

I am aware some of this may simply be what this stage is like. I would still like to hear from people who have been through it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most about this stage is how much of it is about other people rather than about me.

Sorry for the length. If anybody has been at this point, I would very much like to hear how it went.

55

MinaLisbon, PT
#1

The thing that caught me out about maintenance was the absence of a finish line. I had built the whole thing around arriving somewhere and then arrived and found there was nothing to do.

10

BenediktFacilitatorVienna, Austria
#2

Before anyone offers a schedule: what has been described here is a conversation for a prescriber rather than a thread. I am going to be firm about that, kindly.

24

BlueStroud, UK
#3

Coming back to this thread a year on to say that the dullness held. Nothing to report, which is the report.

7

SoniaValencia, ES
#4

Building on what Blue wrote rather than answering the original question.

Year two is the part nobody writes about, and I think that is because it is not a story. It is Wednesdays. Very good Wednesdays, but Wednesdays.

9me too 9

WinnieCarlisle, UK
#5

Sonia said something I want to sit with for a second.

I keep one line from my first year pinned in my notes, and I reread it whenever maintenance feels like nothing. It reminds me what nothing used to cost.

5

PrueChester, UK
#6

Honest answer to how long I plan to be here: I do not know, and my prescriber does not either, and we have agreed to keep looking at it rather than pretending otherwise.

12

QuinGuildford, UK
#7

The best description I have read of this stage was in this circle and it was simply: nothing happened again, and that is the news.

6me too 5

OndineLausanne, CH
#8

That is a very clear way of putting something I have never been able to put clearly.

8

FlorrieBlackburn, UK
#9

Reading Ondine, I recognised more of that than I expected to.

What I did not expect was how much of maintenance is about other people forgetting. The interest fades and you are left doing the same thing quietly, which is fine, and is also lonely sometimes.

12

NellaUtrecht, NL
#10

I have been in maintenance long enough to have had two dull years and one difficult one. The difficult one had nothing to do with the medication and everything to do with my life.

7me too 1

PeronelCanterbury, UK
#11

Just marking that I read this properly rather than skimming it.

6

CoralieMarseille, FR
#12

Something that helped: I decided to keep journalling weekly in maintenance even when there was nothing to say. Those entries are how I noticed a slow change I would otherwise have missed.

11

GittaBonn, DE
#13

Reading Nella, I recognised more of that than I expected to.

My honest account of maintenance is that it took about four months to stop bracing. I kept waiting for something to go wrong and nothing did, and eventually I put the brace down.

7me too 4

SinéadCork, IE
#14

The conversation I found hardest in maintenance was about how long. My prescriber's answer was that we would keep reviewing it, which is honest and was not what I wanted.

8

BenediktFacilitatorVienna, Austria
#15

Facilitator note: this circle is deliberately quiet about numbers and a couple of replies have started to drift that way. Nothing wrong intended and I am steering us back.

24

SaoirseKilkenny, IE
#16

Benedikt said something I want to sit with for a second.

I still come to this circle in maintenance because the newer members ask the questions that keep me honest about what I actually know.

10