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Maintenance

Eighteen months in and my Wednesdays are just Wednesdays

Started 21 March 2025 · 16 replies · 170 hearts · read 2.2k times

WinnieCarlisle, UK · 21 March 2025
1.3 years ago

Something I have been sitting with: Eighteen months in and my Wednesdays are just Wednesdays Not looking for advice so much as other people's experience.

I have been reading here for a few weeks and have not posted, so this is me posting.

I nearly did not post this because it feels like a small thing to be stuck on. It has taken up most of my thinking for a month, so apparently it is not small to me.

My honest position is that I do not know whether to change something or wait, and I have been going round that question for three weeks without getting anywhere.

The number in the title is exact. Eighteen months, counted from the diary, which is the only reason I can answer questions about myself at all.

I will report back either way, because other people's follow-ups have helped me more than their questions.

57

FlorrieBlackburn, UK
#1

Maintenance made me much more interested in strength than I ever was earlier on, mostly because it was the one thing still visibly changing.

13

BenediktFacilitatorVienna, Austria
#2

Before anyone offers a schedule: what has been described here is a conversation for a prescriber rather than a thread. I am going to be firm about that, kindly.

15

WystanCheltenham, UK
#3

The best description I have read of this stage was in this circle and it was simply: nothing happened again, and that is the news.

10me too 1

NevGrimsby, UK
#4

What surprised me was how much I still wanted a community in maintenance. I had assumed I would drift off once it got easy and instead I turn up more.

6

BexPlymouth, UK
#5

I keep one line from my first year pinned in my notes, and I reread it whenever maintenance feels like nothing. It reminds me what nothing used to cost.

9

TressaSt Austell, UK
#6

Honest answer to how long I plan to be here: I do not know, and my prescriber does not either, and we have agreed to keep looking at it rather than pretending otherwise.

10

BirdieMargate, UK
#7

Tressa has already said most of this and I want to add the one part that was different for me.

Coming back to this thread a year on to say that the dullness held. Nothing to report, which is the report.

10

SephNorwich, UK
#8

Year two is the part nobody writes about, and I think that is because it is not a story. It is Wednesdays. Very good Wednesdays, but Wednesdays.

12me too 4

LarkGalway, IE
#9

That is a kinder way of putting it than I have managed about myself.

8

BoazHaarlem, NL
#10

I am two years and four months in and my journal entries have got extremely dull, which I now consider the best possible outcome.

10

TabbyMargate, UK
#11

Boaz has already said most of this and I want to add the one part that was different for me.

The thing that caught me out about maintenance was the absence of a finish line. I had built the whole thing around arriving somewhere and then arrived and found there was nothing to do.

5

EsmeAix-en-Provence, FR
#12

What changed in maintenance for me was the questions. They stopped being about symptoms and started being about how long, and what happens next, and nobody has a very good answer to either.

9me too 2

OrsolyaBudapest, HU
#13

The bit in the middle is the bit I needed to read.

7

KaiVancouver, CA
#14

My prescriber reduced me and we have held there for fourteen months. It has been the most uneventful fourteen months of my adult life and I am not complaining.

12

BenediktFacilitatorVienna, Austria
#15

I am pleased with how this went and I want to say so. Not every thread needs a facilitator and this one mostly did not.

23

Ozzy GWalsall, UK
#16

Reading Benedikt, I recognised more of that than I expected to.

The thing that made maintenance feel real was a completely unremarkable set of bloods and a prescriber who said, come back in a year. That sentence took a while to enjoy.

11