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Maintenance

Fifteen months and I still take it on a Tuesday out of superstition

Started 8 November 2024 · 24 replies · 263 hearts · read 3.1k times

GroverPortland, ME · 8 November 2024
1.7 years ago

Fifteen months and I still take it on a Tuesday out of superstition — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

What I am trying to work out is whether this is a phase with an end to it or the shape of things now, and I do not think I can tell that from inside it.

What I would find most useful is not advice. It is somebody describing what their version of this stage was, and how long it went on for before it changed.

My experience of this stage has not matched any account I have read, which I assume means the accounts are tidier than the reality rather than that something is wrong.

I have checked my notes before posting, so fifteen months is accurate rather than the impression I had been carrying around.

Not looking for a plan. Just company, and whatever anybody found at the same stage.

88

MairéadMayo, IE
#1

The practical shape of my maintenance is: one review a year, one set of bloods, one conversation about whether anything has changed. That is genuinely all of it now.

9

BenediktFacilitatorVienna, Austria
#2

Gently noting that we have three people offering different schedules and none of us is prescribing. Descriptions of what happened to you are welcome; instructions are not.

23

GusStirling, UK
#3

I have been in maintenance long enough to have had two dull years and one difficult one. The difficult one had nothing to do with the medication and everything to do with my life.

7me too 7

FreyaReykjavík, IS
#4

What I did not expect was how much of maintenance is about other people forgetting. The interest fades and you are left doing the same thing quietly, which is fine, and is also lonely sometimes.

11

BunnyWeston-super-Mare, UK
#5

My prescriber reduced me and we have held there for fourteen months. It has been the most uneventful fourteen months of my adult life and I am not complaining.

12

StefanZurich, CH
#6

What changed in maintenance for me was the questions. They stopped being about symptoms and started being about how long, and what happens next, and nobody has a very good answer to either.

10

TildaCambridge, UK
#7

Reading Stefan, I recognised more of that than I expected to.

Nobody prepared me for the strange flatness of it. Not sadness. Just the absence of a project, after two years of having one.

15

LilPreston, UK
#8

Maintenance is where I finally had to deal with things the earlier stages had let me postpone. That was harder than any of the physical adjustment.

8me too 3

OllyReading, UK
#9

Year two is the part nobody writes about, and I think that is because it is not a story. It is Wednesdays. Very good Wednesdays, but Wednesdays.

10me too 8

TedIpswich, UK
#10

Coming back to this thread a year on to say that the dullness held. Nothing to report, which is the report.

8

YannickBrussels, BE
#11

Maintenance is where the non-scale things came into their own for me. All the things I noticed in year one turned out to be the things that stayed.

8me too 5

PriyaReading, UK
#12

Yannick said something I want to sit with for a second.

I would say to anybody approaching this stage: decide what you want your ordinary week to look like, because nothing is going to arrange it for you once the novelty ends.

11

TorinBelfast, NI
#13

The conversation I found hardest in maintenance was about how long. My prescriber's answer was that we would keep reviewing it, which is honest and was not what I wanted.

11

QuinGuildford, UK
#14

I reduced, held, and then reduced again eight months later, both times slowly and both times after a proper conversation. Neither move was dramatic and both were fine.

12

CoralieMarseille, FR
#15

This is why I read the boring weeks. Thank you for the boring weeks.

7

ClémenceNantes, FR
#16

My honest account of maintenance is that it took about four months to stop bracing. I kept waiting for something to go wrong and nothing did, and eventually I put the brace down.

9

GethinMerthyr Tydfil, UK
#17

Something that helped: I decided to keep journalling weekly in maintenance even when there was nothing to say. Those entries are how I noticed a slow change I would otherwise have missed.

5

Bryn MNeath, UK
#18

What Clémence described happened to me too, in a slightly different order.

There is a particular kind of quiet grief in maintenance that took me a long time to name. Something that had been the centre of my attention simply stopped needing it.

13me too 6

AbramAmsterdam, NL
#19

Maintenance made me much more interested in strength than I ever was earlier on, mostly because it was the one thing still visibly changing.

10

NerysRhyl, UK
#20

A thing worth saying: my maintenance is not somebody else's. Mine involves a continuing prescription and a yearly review, and there are people here doing something completely different and doing well.

13

MattNottingham, UK
#21

Picking up Nerys’s point rather than starting a new one.

Two years in and the only thing I actively do now is a note in my phone once a week and a review once a year. Everything else has become automatic.

12

IzzyWatford, UK
#22

What I did not anticipate was becoming a person other members ask questions of. I still feel like I am making it up, and apparently that never entirely stops.

5

BenediktFacilitatorVienna, Austria
#23

I am going to gently redirect. The original question was about how long, and we have spent nine replies on what to do instead. Both are worth discussing and only one was asked.

20me too 3

GildaTrieste, IT
#24

My maintenance has had two wobbles in it, both around big life events, both of which passed. I mention them because a smooth account would be a dishonest one.

14