Something I have been sitting with: Nobody in either clinic wanted to own the question Not looking for advice so much as other people's experience.
Bringing this here rather than to the general circle because the specifics change the answer.
What has changed is small and I only noticed because I keep records, and I cannot decide whether small and consistent is worth raising.
I have two clinicians who each manage half of me and neither of them has seen the whole picture, which is how I ended up asking a support community.
I would like to know what other people in this position asked for, because I do not think I am asking for the right things.
I will report back after my specialist appointment, because there is not much written about this and I would like to add to it.
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