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ADHD medication, appetite and a routine in pieces

Started 15 May 2026 · 18 replies · 118 hearts · read 2.4k times

TacitaRome, IT · 15 May 2026
2 months ago

ADHD medication, appetite and a routine in pieces — putting it in its own thread so it does not get lost in the check-in.

I have been sitting on this for a month.

I am aware this may be about something older than any of this, and that is part of what I am trying to work out by writing it down.

This is the third time I have started this post and the first time I have got to the end of it, so I am going to press the button before I lose my nerve.

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly, which I have not managed anywhere else.

I do not know how to end this properly, so I am just going to stop here and press the button.

39

GwilymCaernarfon, UK
#1

Somebody here suggested writing my own protocol as a document, and I did, and it is now four pages and it runs my whole week.

4

KikiFacilitatorGlasgow, UK
#2

Facilitator note: this is a circle for saying things out loud, and there is no obligation on anybody to act on what they say here.

12me too 7

SoniaValencia, ES
#3

Holding this with you rather than answering it.

5

EsmeAix-en-Provence, FR
#4

The thing I would flag is that a change in routine for any reason has knock-on effects for weeks. Plan for that rather than being surprised.

4

AnnikaStockholm, SE
#5

I would gently say that if you need things explained differently, ask. Mine were, once I asked, and the appointments improved immediately.

6

ObieNashville, TN
#6

The masking cost at appointments is real and I now bring somebody with me, which halves the exhaustion afterwards.

6

LeifTrondheim, NO
#7

Gently disagreeing with Obie, or rather adding the other half of it.

My notes are the only reason I can answer questions about myself. Without them I would have nothing to bring to a review at all.

5

TobiasHamburg, DE
#8

What surprised me was how much better I felt once one specific sensory issue was resolved. It had been draining more than I realised.

5

WilfStoke, UK
#9

I had a very difficult fortnight when my routine broke for an unrelated reason, and rebuilding it took longer than I expected.

7

Bryn MNeath, UK
#10

No wisdom, just: I am sorry. That sounds genuinely hard.

6

TarqWindsor, UK
#11

Picking up Bryn M’s point rather than starting a new one.

I found the unpredictability harder than any individual difficulty. Knowing what to expect is worth more to me than the thing being easy.

5me too 1

TacitaRome, IT
#12

Nothing here is medical advice, and interactions with other medication are a real question worth taking to a pharmacist specifically.

7

GwilymCaernarfon, UK
#13

Coming back two years on to say the system held, that it is elaborate and it works, and that I no longer apologise for how elaborate it is.

7

NixLeith, UK
#14

What Tacita described happened to me too, in a slightly different order.

Interoception is the whole thing for me. I have never reliably known when I was hungry, and a change in appetite signalling was always going to be complicated.

5

SoniaValencia, ES
#15

My routines carried me through the first year. The parts that were routine were effortless and the parts that required judgement were exhausting.

4

EsmeAix-en-Provence, FR
#16

What I found was that the general advice assumes you can tell how you feel and act on it, and that assumption does not hold for me.

9

KikiFacilitatorGlasgow, UK
#17

Stepping in to say that a hard week does not need a cause to be legitimate. Several replies have been looking for one on this person's behalf.

13

ObieNashville, TN
#18

My experience is that the medical part has been simple and the logistics have been the entire challenge.

8me too 2