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Neurodivergent members

The alarm-based system my occupational therapist suggested

Started 17 April 2026 · 13 replies · 79 hearts · read 1.3k times

NixLeith, UK · 17 April 2026
3 months ago

The alarm-based system my occupational therapist suggested Writing it down partly to work out what I actually think.

This is a difficult one to write and I have deleted it twice.

I do not have a question exactly. I have a thing I have noticed about myself and no idea whether it is worth mentioning to anybody.

I am aware this may be about something older than any of this, and that is part of what I am trying to work out by writing it down.

I do not know how to end this properly, so I am just going to stop here and press the button.

26

Bryn MNeath, UK
#1

The thing I could not do was notice a symptom in the moment. I could only notice it in retrospect from notes, so notes became essential.

6me too 6

KikiFacilitatorGlasgow, UK
#2

Facilitator note: if any of this has landed close to home while you were reading, our support resources page lists the kinds of service worth finding. No obligation and no drama.

11

EsmeAix-en-Provence, FR
#3

What I got wrong was assuming I would remember. I do not remember. Everything that works for me is written down or automated.

8

GwilymCaernarfon, UK
#4

Coming back to what Bryn M wrote further up, because it is the bit I keep thinking about.

Somebody in this circle described a body that does not send clear signals, and it was the first time I had seen that written down anywhere.

6

TarqWindsor, UK
#5

Something I did not expect: my safe foods stopped being safe for a while, which was much more destabilising than the medical side of things.

6

SoniaValencia, ES
#6

Gently disagreeing with Gwilym, or rather adding the other half of it.

I set four alarms and it is not excessive, it is what makes this possible, and I have stopped feeling odd about it.

5me too 2

AnnikaStockholm, SE
#7

My ADHD medication and everything else needed a proper look at together, and a pharmacist did that better than either prescriber had.

5

LeifTrondheim, NO
#8

Bookmarking this. Thank you.

4

ObieNashville, TN
#9

I had a very difficult fortnight when my routine broke for an unrelated reason, and rebuilding it took longer than I expected.

6

WilfStoke, UK
#10

What worked was external signals. Timers, notes, a visible chart, my partner asking a specific question at a specific time.

2

TobiasHamburg, DE
#11

Grateful you posted rather than kept it to yourself.

5

KikiFacilitatorGlasgow, UK
#12

I am pleased with the pace of this thread. Nobody has rushed to fix anything and that restraint is the skill this circle asks for.

9

Bryn MNeath, UK
#13

What Kiki described happened to me too, in a slightly different order.

Coming back two years on to say the system held, that it is elaborate and it works, and that I no longer apologise for how elaborate it is.

6