Forgetting to eat when there is no hunger cue at all

The masking cost at appointments is real and I now bring somebody with me, which halves the exhaustion afterwards.

My notes are the only reason I can answer questions about myself. Without them I would have nothing to bring to a review at all.

What worked was external signals. Timers, notes, a visible chart, my partner asking a specific question at a specific time.

Wilf has already said most of this and I want to add the one part that was different for me.

I had a very difficult fortnight when my routine broke for an unrelated reason, and rebuilding it took longer than I expected.

Something practical: everything lives in one box in one place and it never moves. That single rule has prevented dozens of problems.

My experience is that the medical part has been simple and the logistics have been the entire challenge.

Recognition rather than advice, if that is any use at all.

I found appointments difficult for reasons unrelated to the subject, and writing everything down beforehand solved most of it.

Nothing here is medical advice, and interactions with other medication are a real question worth taking to a pharmacist specifically.

The thing I would flag is that a change in routine for any reason has knock-on effects for weeks. Plan for that rather than being surprised.

Interoception is the whole thing for me. I have never reliably known when I was hungry, and a change in appetite signalling was always going to be complicated.

Thank you. Genuinely.

What I found was that the general advice assumes you can tell how you feel and act on it, and that assumption does not hold for me.