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Autistic and being told to just listen to my body

Started 4 December 2025 · 14 replies · 127 hearts · read 2.4k times

TarqWindsor, UK · 4 December 2025
8 months ago

Autistic and being told to just listen to my body Writing it down partly to work out what I actually think.

This is a difficult one to write and I have deleted it twice.

I am aware this may be about something older than any of this, and that is part of what I am trying to work out by writing it down.

The thing I keep coming back to is that I expected to feel one way and I feel another, and the gap between those is what I want to talk about.

I do not have a question exactly. I have a thing I have noticed about myself and no idea whether it is worth mentioning to anybody.

If you have felt anything like this, I would like to know. If you have not, that is worth knowing too.

42

NixLeith, UK
#1

What I got wrong was assuming I would remember. I do not remember. Everything that works for me is written down or automated.

6

TobiasHamburg, DE
#2

Somebody in this circle described a body that does not send clear signals, and it was the first time I had seen that written down anywhere.

11

ObieNashville, TN
#3

Gently disagreeing with Tobias, or rather adding the other half of it.

I found appointments difficult for reasons unrelated to the subject, and writing everything down beforehand solved most of it.

3

KikiFacilitatorGlasgow, UK
#4

Holding the boundary once, clearly: no figures, no comparisons and no lists in this circle. That has been the rule since it opened and it is not negotiable.

18

TacitaRome, IT
#5

Reading Tobias, I recognised more of that than I expected to.

My ADHD medication and everything else needed a proper look at together, and a pharmacist did that better than either prescriber had.

10

WilfStoke, UK
#6

What helped was making everything the same. Same day, same time, same order, same place, and removing every decision I could.

9

SoniaValencia, ES
#7

The thing I could not do was notice a symptom in the moment. I could only notice it in retrospect from notes, so notes became essential.

9me too 8

LeifTrondheim, NO
#8

Tacita — yes, and the bit that took me longest to accept was the next part.

I would say build the structure before you need it. I improvised for three months and it went badly, then I built a system and it has held for two years.

9

AnnikaStockholm, SE
#9

Thank you for the update. Threads that stop are the worst kind.

10

EsmeAix-en-Provence, FR
#10

Sensory change was real. Textures I had eaten my whole life became impossible for about two months and nobody had warned me.

4

Bryn MNeath, UK
#11

Picking up Esme’s point rather than starting a new one.

What surprised me was how much better I felt once one specific sensory issue was resolved. It had been draining more than I realised.

7

TarqWindsor, UK
#12

My notes are the only reason I can answer questions about myself. Without them I would have nothing to bring to a review at all.

8

KikiFacilitatorGlasgow, UK
#13

Noting for anybody reading later: if the person who opened this has come back, their own words are worth more than any reply to them. It is easy to read the top of a page and stop there.

17

TobiasHamburg, DE
#14

Building on what Tarq wrote rather than answering the original question.

I would gently say that if you need things explained differently, ask. Mine were, once I asked, and the appointments improved immediately.

6