Batch cooking and freezer labels as a survival strategy

What surprised me was how much better I felt once one specific sensory issue was resolved. It had been draining more than I realised.

The masking cost at appointments is real and I now bring somebody with me, which halves the exhaustion afterwards.

My experience is that the medical part has been simple and the logistics have been the entire challenge.

What worked was external signals. Timers, notes, a visible chart, my partner asking a specific question at a specific time.

I had a very difficult fortnight when my routine broke for an unrelated reason, and rebuilding it took longer than I expected.

My eating became much more repetitive and my dietitian was entirely relaxed about that, which I had braced to be told off for.

Adding a name to the list of people this helped.

What I found was that the general advice assumes you can tell how you feel and act on it, and that assumption does not hold for me.

My routines carried me through the first year. The parts that were routine were effortless and the parts that required judgement were exhausting.

I would have written the same thing a year ago, word for word.

Nothing here is medical advice, and interactions with other medication are a real question worth taking to a pharmacist specifically.

Somebody here suggested writing my own protocol as a document, and I did, and it is now four pages and it runs my whole week.