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My safe foods stopped being safe and I panicked

Started 7 March 2025 · 14 replies · 169 hearts · read 2.8k times

WilfStoke, UK · 7 March 2025
1.4 years ago

Something I have been sitting with: My safe foods stopped being safe and I panicked Not looking for advice so much as other people's experience.

I have been sitting on this for a month.

I would like to hear from people who found this hard rather than from people who did not, which I know is an odd thing to ask for.

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly, which I have not managed anywhere else.

Thank you for reading. I am not expecting anybody to have an answer and I feel better for having written it.

56

TarqWindsor, UK
#1

Executive function was where this got hard. Not the doing, the initiating, and building a rigid structure around it was the only thing that worked.

6

LeifTrondheim, NO
#2

Gently disagreeing with Tarq, or rather adding the other half of it.

Sensory change was real. Textures I had eaten my whole life became impossible for about two months and nobody had warned me.

10

KikiFacilitatorGlasgow, UK
#3

Noticing that the thread has stayed with feeling rather than sliding into logistics, which is right for this circle and takes discipline.

15

TacitaRome, IT
#4

Quietly agreeing from the other side of the country.

13

GwilymCaernarfon, UK
#5

What Kiki described happened to me too, in a slightly different order.

My ADHD medication and everything else needed a proper look at together, and a pharmacist did that better than either prescriber had.

12

NixLeith, UK
#6

What helped was making everything the same. Same day, same time, same order, same place, and removing every decision I could.

10

SoniaValencia, ES
#7

Something I did not expect: my safe foods stopped being safe for a while, which was much more destabilising than the medical side of things.

14

TobiasHamburg, DE
#8

I set four alarms and it is not excessive, it is what makes this possible, and I have stopped feeling odd about it.

12me too 7

AnnikaStockholm, SE
#9

Nix, thank you for that. It gives me somewhere to start from.

Somebody here suggested writing my own protocol as a document, and I did, and it is now four pages and it runs my whole week.

11

EsmeAix-en-Provence, FR
#10

I found the unpredictability harder than any individual difficulty. Knowing what to expect is worth more to me than the thing being easy.

15me too 8

Bryn MNeath, UK
#11

Picking up Esme’s point rather than starting a new one.

Coming back two years on to say the system held, that it is elaborate and it works, and that I no longer apologise for how elaborate it is.

9

WilfStoke, UK
#12

Interoception is the whole thing for me. I have never reliably known when I was hungry, and a change in appetite signalling was always going to be complicated.

11me too 2

KikiFacilitatorGlasgow, UK
#13

I am going to gently redirect. The question was about how to say something to a clinician, and we have spent six replies on whether it should be said at all.

18

LeifTrondheim, NO
#14

What I found was that the general advice assumes you can tell how you feel and act on it, and that assumption does not hold for me.

13