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Under 30

Living at home and hiding the box

Started 6 June 2025 · 20 replies · 185 hearts · read 3.4k times

TorrinAberdeen, UK · 6 June 2025
about a year ago

Living at home and hiding the box — putting it in its own thread so it does not get lost in the check-in.

The logistics of this are defeating me more than the medicine is.

What I am after is the version of this that works when nobody is helping, because that is my situation and most accounts assume otherwise.

Practical question, and possibly a silly one, but the logistics of this are defeating me considerably more than the medicine is.

If anybody has an arrangement that works and is willing to write it out, I would be very grateful.

62

TobinCork, IE
#1

My prescriber and I have a plan that gets reviewed every six months, and having it be revisable rather than fixed suits my life.

6me too 2

Facilitator note: nothing in this circle is medical advice and the practical arrangements still need agreeing with whoever prescribes for you.

23

TallisEly, UK
#3

Torrin — taking your question as you asked it, because I think the thread has widened it.

What helped was one friend who knows everything, which took me eight months to arrange and has been worth all of it.

8

OsmanAnkara, TR
#4

The thing I would flag to anybody young here is that the internet is very loud on this subject and most of it is selling something.

10

GwionBangor, UK
#5

My experience is that this has been straightforward medically and complicated in every other respect.

6

TorinBelfast, NI
#6

I found the social side hardest. Everybody eating and drinking constantly and no interest in why I was not.

8

BarnabyWinchester, UK
#7

No advice, just company. Here if it helps.

7

NazneenDhaka, BD
#8

Gwion has already said most of this and I want to add the one part that was different for me.

Something I got right was being honest at the first appointment about my history rather than editing it, which I nearly did.

9me too 3

FlorrieBlackburn, UK
#9

Picking up Torin’s point rather than starting a new one.

My friends do not know and I have found that isolating, and this is where I say the things I cannot say to them.

10

AikoOsaka, JP
#10

What surprised me was how much of the material is aimed at people twice my age, and how little of it fits my actual week.

6

TildaCambridge, UK
#11

Reading Florrie, I recognised more of that than I expected to.

My honest report is that I am doing well, that it has been mostly boring, and that the boring part is the part I value.

9me too 8

GabePhoenix, AZ
#12

The comparison with people my age online was actively harmful for me and I stopped reading any of it about a year ago.

7

NyalaAddis Ababa, ET
#13

What I found is that being taken seriously at my age required me to be very organised in appointments, more than an older person would need to be.

8

LinneaTurku, FI
#14

Marking that I am here, in case that counts for anything today.

10

TorrinAberdeen, UK
#15

Something that helped was writing down why I started, because at eighteen months I could not remember what my reasoning had been.

9

TobinCork, IE
#16

I moved cities and had to rebuild every arrangement, which took three months, and I would plan for that if I moved again.

9me too 4

GwenBangor, UK
#17

Adding a name to the list of people this helped.

7

TallisEly, UK
#18

Somebody in this circle said the horizon is long and the decision is revisable, and that combination is what makes it manageable for me.

11

GwionBangor, UK
#20

Picking up Tallis’s point rather than starting a new one.

I would gently say that if your relationship with eating has a difficult history, that is worth telling whoever is prescribing.

10